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bulltalk.65

Back up and doin good

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Hey guys,

Sorry for the long lapse in updating you all.

At this point in my life I try to put full focus and attention on the health situation and kind of leave everything else to the back burner.

I cant remember where I left off with you all but ended up having cancer show up in my thyroid this time.

Since it was concentrated to the right side the doc wanted to hold me under anaesthesia during surgery so they could do a fast lab/biopsy on the left side. They couldn't get a result back so was under for just over 3 hours.

The surgery went well but being held under for some odd reason didnt set well this time.

Some how the anaesthesia built up in my lungs so I was a bit of a sick mess for about 7 days after the surgery. Wife said I smelled and tasted like a medicine cabinet.

Started feeling better and somehow ended up with an infection in the incision on my neck so was back in the hospital for 4 days. Got released and wasnt feeling right but thought it would pass but nope, somehow ended up with a bleed from medications so was anemic to the point of passing out any time I tried to get up. 

Ended up goin back in and having transfusions, 4 pints.

So, after a couple rough months Im back up and runnin..😉

Hope to find everyone here doin well, Ill try to get in here more consistent and am going to start back in on gettin a video cam build goin here shortly...

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Man o Man I'm so glad to hear from you, Don't-u-ever-do-that-again      LOL

Like you said before, you will be alright....

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Dang man, sorry to hear you had to go through all of that, but glad to see you back!

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Thanks guys, I really appreciate the thoughts... Tinhorn, I promise not to do that again, just get caught up in the life drama and forget about other important things..;) 

It really is a pain in the arse dealin with all the doctors, blook work, scans etc etc but I guess this will be in the cards for me... Im a fighter though so I wont go down easy that you can count on...;) 

Gary, how is the wife doing?

 

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She's doing pretty good.  She did her first round of chemo a couple of weeks ago and was severely sick for a week.  She decided she won't do it again.  She was supposed to do it every two weeks.  So basically, she would be miserable the rest of her life, since the chemo can't cure it.  We are still doing the Joe Tippin's protocol that I emailed you about.  We are hopeful about it.  They have a Facebook page and several people have been posting good results.  Even stage 4 patients are getting good results and some are completely clear.

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22 hours ago, ghoot said:

She's doing pretty good.  She did her first round of chemo a couple of weeks ago and was severely sick for a week.  She decided she won't do it again.  She was supposed to do it every two weeks.  So basically, she would be miserable the rest of her life, since the chemo can't cure it.  We are still doing the Joe Tippin's protocol that I emailed you about.  We are hopeful about it.  They have a Facebook page and several people have been posting good results.  Even stage 4 patients are getting good results and some are completely clear.

Glad to hear she is doing good.  I know the chemo is off the hook horrible. That's a hard decision to make and I don't envy her having to make that choice. I did the same the first time around and chose to not do it but after finding the second large tumor I felt I didn't have a choice at that point. Hind sight is 20/20 though, that chemo bout killed me...

In my first 6 month run of it I lost 91 lbs, it was the every other week regimen and usually lasted 48 to 51 hours long on a portable pump, the first 5 hours at the infusion clinic then home to finish the last 45 hrs or so.  It would take a week to get back to feeling better just to have to start the next round the following week.. it sucked to say the least, not eating, vomiting and being sick 5 to 7 days a week, couldn't taste food and any that I did consume came right back out. 

I read Joes story (link you sent) and the canine med was/is interesting. I have not tried that as of yet but plan to just for the hec of it, cant hurt that's for sure.

One thing I do know for fact is that the chemo strips your immune system and eliminates all forms of vitamin and minerals so the supplements during treatment and off treatment is a must.  Every month my blood work comes back as Vitamin D deficient so I do 5000IU per week (one pill weekly). If I miss a week my blood work shows it. kind of weird but I guess that's one of my physical flaws..

The other primary thing that is a must do, is to stay positive. Use every means possible to stay upbeat, it really truly helps. I used an old trick some one taught me 30+ years ago and that's subliminal suggestion, leaving little sticky notes every where with positive suggestions. I had/have them on everything from the bathroom mirror to my work bench to my dresser drawer and computer screen... It works.. 😉

Please keep me updated on how she is doing and if you ever need anything let me know, I'm more than willing to pass on any personal advice or just positive energy. It can be trying at times for both spouses so it never hurts to have extra avenues of support.. 😉

 

p.s.  during my first year I bought a ton of books on the subject including diets and supplemental stuff, I can send them your way if you like, just let me know.. 

 

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Glad to hear things are looking up. Remain positive and remember we are here............if you need anything.......

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On 7/20/2019 at 11:41 AM, bulltalk.65 said:

Glad to hear she is doing good.  I know the chemo is off the hook horrible. That's a hard decision to make and I don't envy her having to make that choice. I did the same the first time around and chose to not do it but after finding the second large tumor I felt I didn't have a choice at that point. Hind sight is 20/20 though, that chemo bout killed me...

In my first 6 month run of it I lost 91 lbs, it was the every other week regimen and usually lasted 48 to 51 hours long on a portable pump, the first 5 hours at the infusion clinic then home to finish the last 45 hrs or so.  It would take a week to get back to feeling better just to have to start the next round the following week.. it sucked to say the least, not eating, vomiting and being sick 5 to 7 days a week, couldn't taste food and any that I did consume came right back out. 

I read Joes story (link you sent) and the canine med was/is interesting. I have not tried that as of yet but plan to just for the hec of it, cant hurt that's for sure.

One thing I do know for fact is that the chemo strips your immune system and eliminates all forms of vitamin and minerals so the supplements during treatment and off treatment is a must.  Every month my blood work comes back as Vitamin D deficient so I do 5000IU per week (one pill weekly). If I miss a week my blood work shows it. kind of weird but I guess that's one of my physical flaws..

The other primary thing that is a must do, is to stay positive. Use every means possible to stay upbeat, it really truly helps. I used an old trick some one taught me 30+ years ago and that's subliminal suggestion, leaving little sticky notes every where with positive suggestions. I had/have them on everything from the bathroom mirror to my work bench to my dresser drawer and computer screen... It works.. 😉

Please keep me updated on how she is doing and if you ever need anything let me know, I'm more than willing to pass on any personal advice or just positive energy. It can be trying at times for both spouses so it never hurts to have extra avenues of support.. 😉

 

p.s.  during my first year I bought a ton of books on the subject including diets and supplemental stuff, I can send them your way if you like, just let me know.. 

 

We probably have some of those same books, but I don't think she has finished the first one that I bought her, LOL.  Sounds like you guys may have had the same chemo, she had the pump too.  I think it was 5FU.  What's crazy to me is that drug is like 50-60 years old.  I thought we were supposed to be making big breakthroughs in cancer treatment, but seems this old drug is the most common chemo used.

On a positive note, her stomach has been burning for about a year so she was taking protonix for acid reflux.  If she forgets it for one day then the burning is back.  Well, she noticed a few days ago that she had forgot to take in for a couple of days and was fine.  So it has been 5-6 days now and no burning.  So, we are hopeful that the Fenbendazole in the dog wormer is working!  She has been on it about 8-9 weeks, and that seems to be when people on the Facebook page start seeing results as well.

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51 minutes ago, ghoot said:

We probably have some of those same books, but I don't think she has finished the first one that I bought her, LOL.  Sounds like you guys may have had the same chemo, she had the pump too.  I think it was 5FU.  What's crazy to me is that drug is like 50-60 years old.  I thought we were supposed to be making big breakthroughs in cancer treatment, but seems this old drug is the most common chemo used.

On a positive note, her stomach has been burning for about a year so she was taking protonix for acid reflux.  If she forgets it for one day then the burning is back.  Well, she noticed a few days ago that she had forgot to take in for a couple of days and was fine.  So it has been 5-6 days now and no burning.  So, we are hopeful that the Fenbendazole in the dog wormer is working!  She has been on it about 8-9 weeks, and that seems to be when people on the Facebook page start seeing results as well.

Thats good to hear..  I kind of assumed you probably already got a ton of books/info but figured I'd ask... 😉   

What I  was on was folfox but it had fluoruorcil in it as well as oxaliplatin which was supposed to be the highest and strongest allowable. At the time they seemed to think because I was young (51 at the time) and strong (so they assumed) that I would be able to handle it. I did but it left serious damage to the nerves in my hands and feet, its called nuerapathy or hand foot syndrome which really stinks. I can barely feel my fingers and my feet are horrible pins and needles day & night...

 

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That stinks man.  My wife starting having symptoms of that the 2nd day.  That chemo is some nasty stuff!

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22 hours ago, ghoot said:

That stinks man.  My wife starting having symptoms of that the 2nd day.  That chemo is some nasty stuff!

Well hopefully since she wont be doing any more chemo all the bad stuff will be skipped for her..  Our prayers are with you guys and we really hope she gets to feeling better soon... 😉 

 

 

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